‘Nobody was listening’: how Diane’s poor experiences as a parent led to finding her calling as a Dudley advocate
Diane Williams is a parent of three and a carer from Stourbridge and now works for us as an advocate in our Dudley team.
She was not listened to when her children needed support and that led her to a career in advocacy — where it’s now her job to ensure people’s voices are heard.
Speaking during Advocacy Awareness Week, Diane reflects on the ‘why advocacy’ theme, and how her experiences as a parent led her to become a professional, independent advocate.
Diane Williams from Stourbridge works in Dudley as an advocate
“My daughter has learning disabilities and autism spectrum disorder (ASD), while my twin sons also have ASD, and one of them now struggles with refractory epilepsy.
“Since they were young, professionals often did not listen to me regarding my children’s needs and concerns about their development. As they grew older, those professionals did not listen to my children either.
“I served as their voice when they were unable to find theirs. Throughout their childhood, we faced numerous challenges related to mental health, proper support from services, and a significant lack of support for our family as a whole.
“I felt like I was ‘in a bubble’ as a carer for my children, and that nobody was listening.
One day, I decided I needed to do something for me, to be able to get my voice out there, which in turn will help my children and others.
In 2018, Diane started a voluntary role, supporting people in Dudley with advocacy needs which did not fall under specific legislation like the Care Act or the Mental Health Act — where a qualified advocate is required.
Two years later — just before the Covid-19 pandemic hit — she became a Care Act advocate and now she also specialises in safeguarding issues and supporting people who have their freedom restricted or denied in places like care homes and hospitals.
I help people find their voice and challenge services whenever possible, which has sometimes been difficult as a parent since I often felt unheard.
“I love my role. I do it because a lot of people out there are not being heard. Systems are failing people, and some professionals in health and social care aren’t listening.
“As an advocate, it’s about being on the side of the person. But I say to my clients ‘I’m not here to tell you what to do, I’m here to give you choices so you can make your own decisions’.
“One of the best things about being an advocate is supporting people to achieve independence and the outcomes they seek. And to see the smiles and relief which comes with that. Ultimately, it’s about justice.”
Today, my adult children are thriving. While they still need some support to have their voices heard, they occasionally express themselves well, as I have taught them.
“One has held down a job, passed their driving test, and my sons have even travelled abroad together. They have all gained independence and have become remarkable young adults, making me extremely proud.”
If you’re interested in volunteering or becoming an advocate, visit www.voiceability.org/get-involved.